Niepełnosprawnosc w rodzinie jako wartosc dodana. Miedzynarodowe andragogiczne badania nad rodzinami generacyjnymi

Dr hab. Beata Borowska-Beszta

Uniwersytet Mikołaja Kopernika w Toruniu

Dr hab. Urszula Bartnikowska, prof. UWM

Uniwersytet Warmińsko-Mazurski w Olsztynie

Prof. dr hab. Jerzy Stochmiałek

Uniwersytet Kardynała Stefana Wyszyńskiego w Warszawie

Niepełnosprawność w rodzinie jako

wartość

dodana.

Międzynarodowe andragogiczne

badania nad rodzinami generacyjnymi

Abstrakt

Treści zawarte w artykule dotyczą fenomenu niepełnosprawności w rodzinach generacyjnych, w których rodzice oraz członkowie rodzin podjęli zadanie wychowania i wieloletniego prowadzenia ku i przez dorosłość dzieci z niepełnosprawnością. Tekst składa się z części wprowadzającej w pro-blematykę sytuacji rodzin generacyjnych jako środowisk opieki i wsparcia. Kolejno zostaje zaryso-wana problematyka stresu w rodzinach oraz przegląd wybranych badań światowych z udziałem członków systemu rodzinnego, czyli rodziców i rodzeństwa. Wskazane problemy są analizowane na tle procesu adaptacji, budowy więzi oraz udziału we wsparciu całożyciowym osób dorosłych z zaburzeniami rozwoju (developmental disabilities) lub zaburzeniami psychicznymi (mental disorders)1_.

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Disability as Added Value. The International Andragogic Issues in the Study of Generational Families

The issues raised in this article refer to the phenomenon of disability in generational families, where parents and family members undertook the task of education, conduct toward adulthood of children with disabilities. The text consists of the introductory part of the problems of the situation in gener-ational families, as communities of long-term care and support. Sequentially are outlined problems of stress in families and a review of studies involving members of the family system, such as parents and siblings. Indicated problems are discussed in the context of process of adaptation to disability of family members, relationships building and participation in long life support of adults with devel-opmental disabilities or mental disorders.